The hospice handbook : A complete guide
- Beresford, L.
Dying well : The prospect for growth at
the end of life-
Final Gifts - Callanan, M. and Kelley,
Fading Away: The Experience of Transition in
Families with Terminal Illness - Davies, B. et al.
The Last Dance: Encountering Death and Dying - Doka, K. J.
AIDS, Fear and Society: Challenging the Dreaded Disease -
Doka, K. J.
Living With Life-Threatening Illness: A Guide for Individuals, Families
and Caregivers - Grollman, E. A
Bereaved Children and Teens: A Support Guide for Parents and
Professionals - Grollman, E. A.
Straight Talk About Death for Teenagers: How to Cope with Losing
Someone You Love - Irion, P.
The Funeral - Vestige or Value? - Krementz, J.
How It Feels When a Parent Dies - Lattanzi-Licht, M. E.
The Hospice Choice: In Pursuit of a Peaceful Death - MacPherson,
She Came To Live Out Loud - Miller, J.
Winter Grief, Summer Grace: Returning to Life After a Loved One
Dies - Prend, A. D.
Transcending Loss: Understanding the Lifelong
Impact of Grief and How to Make It Meaningful - Rando, T. A.
How to Go on Living When Someone You Love Dies - Sanders,
Surviving Grief and Learning to Live Again
- Stoddard, S.
The Hospice Movement - Webb, M.
The Good Death - Webb, M.
Crash Support Network - organization
established to aid and facilitate the grieving process of people who
have been affected by or involved in an air crash.
Association National Office - The Amyotrophic
Lateral Sclerosis (ALS) Association is dedicated to the fight against
ALS, commonly referred to as Lou Gehrig's disease. The Association
is a national information resource on ALS, funding research and providing
referrals for counseling, training and support.
Compassionate Friends, Inc. - The Compassionate
Friends is a self-help organization whose purpose is to offer friendship
and understanding to parents and siblings following the death of a
child. They have 580 chapters nationwide which provide monthly meetings,
phone contacts, lending libraries and a local newsletter. The national
organization provides newsletters, distributes grief-related materials,
and answers requests for referrals and information.
The Dougy Center
- The Dougy Center, The National Center for
Grieving Children and Families, provides support groups for grieving
children that are age specific (3-5, 6-12, teens) and loss specific
(parent death, sibling death, survivors of homicide/violent death,
survivors of suicide). The Center is in the process of publishing
a series of guidebooks based on what they've learned from the children
they have served. Titles include Helping Children Cope With Death
and Helping Teens Cope With Death. Additional services that
include national trainings, consultations to schools and organizations,
crisis-line information, and referrals.
Gay Men's Health
Crisis - Gay Men's Health Crisis is the
nations oldest and largest AIDS service organization and is a model
for AIDS care, education, and advocacy world wide. GMHC offers a multitude
of support services, including legal assistance, nutritional counseling,
family services and crisis intervention.
Club - Gilda's Club is a psychosocial
support community for people with cancer, their families and friends,
offering support, meditation and networking groups, pot-luck suppers,
and social events. Everything is entirely free. There are special
programs for children whose parents or family members have cancer
or who have cancer themselves. Have ten affiliates across the United
States, Canada and London.
Loving Memory - Mutual support,
friendship, and help for parents who have lost their only child or
all of their children. In Loving Memory hosts a national conference
every two years for bereaved parents as well as the professionals
who work with them.
National Program Office - The goal of Last
Acts is to achieve the following: greater awareness of problems in
the care of critically ill and dying Americans; greater recognition--by
various organizations and groups--of their responsibility to participate
in developing and implementing solutions; and increased collaborative
activities, information-sharing, and continued engagement in discussion
of end-of-life issues.
for Caring: America's Voices for the Dying - A
nonprofit organization that partners individuals and organization
in a powerful collaboration to improve how people die in our society.
Partnership for Caring operates a national crisis and informational
hotline dealing with end-of-life issues and provides state-specific
living wills and medical powers of attorney.
Life - Rosetta Life is an English-based,
artist-led organization established to work in hospices to enable
the terminally ill and the bereaved to document their lives in whatever
artistic form is appropriate.
Assistance Program for Survivors, Inc. (TAPS) - TAPS
is a national non-profit organization made up of, and providing services
at no cost to, all those who have suffered the loss of a loved one
in the Armed Forces. The heart of TAPS is its national military survivor
peer support network called SurvivorLINK, which links together the
families, friends, and coworkers of those who are grieving. TAPS also
offers bereavement counseling referral, provides case worker assistance
that carries the work of the casualty assistance officers into the
future, hosts the nation's only annual National Military Survivor
Seminar and Kids Camp, publishes a quarterly journal mailed at no
charge to survivors and caregivers, maintains a comprehensive web
site, and offers a toll-free crisis and information line available
24 hours a day.
Hospice Network - The Volunteer Hospice
Network (VHN) is an affinity group of more than 150 volunteer organizations
in the United States that provide a wide variety of free services
to the terminally ill, their families, and those who are grieving.
Our members include volunteer hospices, grief support programs, and
many other volunteer groups that care for the dying whether or not
they are called "hospice".
- an information and self-help resource for,
and by, widows and widowers. William
Wendt Center for Loss and Healing - The
William Wendt Center for Loss (non-sectarian) specializes in support
to people affected by all types of illness, loss, and grief. Services
include counseling for adults and children; grief awareness programs
for schools, work places, and religious institutions; education/training
for mental health and health professionals in clinical applications
of loss; and a volunteer program offering emotional and practical
support for those living with illness, loss, or grief.
New Resources May 19, 2004
A Graceful Passage: Notes on the Freedom to Live or Die by Arnold
R. Beisser, MD (New York: Bantam Books, 1991).
Beyond Grief by Carol Staudacher ( Oakland, CA: New Harbinger Pub.,
Borrowed Time: An AIDS Memoir by Paul Monette (New York: Avon,
Companion Through the Darkness by Stephanie Ericsson ( New York:
Harper Collins, 1993).
Dying Well: The Prospect for Growth and the End of Life by Dr.
Ira Byock (New York: Riverhead Books, 1997).
Final Gifts: Understanding the Special Awareness, Needs, and Communication
Of the Dying by Maggie Callahan & Patricia Kelley (New York:
Bantam Books, 1993).
Gone From My Sight: The Dying Experience by Barbara Karnes (Kansas:
Barbara Karnes private printing, 1995).
How Can I Help by Ram Dass (New York: Alfred A. Knopf, 1985).
How to Survive the Loss of a Love by Colgrove, Bloomfield &
McWilliams (Los Angeles: Prelude Press, 1991).
"I Don't Know What to Say": How to Help and Support Someone
Who is Dying by Robert Buckman, MD (New York: Vintage Books, 1989).
I'm With You Now by Catherine M. Ray (New York: Bantom Books, 1997).
Intimate Death: How the Dying Teach us to Live by Marie de Hennezel
(New York: Vintage Books, 1997).
Kitchen Table Wisdom by Rachel Naomi Remen, MD (New York: Riverhead
Lifetimes: The beautiful way to explain death to children by Bryan
Mellonie and Robert Ingpen (New York: Bantam Books, 1983).
Living Our Dying: A way to the sacred in everyday life by Joseph
Sharp ( New York: Hyperion, 1996).
Love Has no Fear: One couple's search for healing by Joan Peterson
(VA: Merkaba Press, 1997).
Man's Search for Meaning by Viktor E. Frankl ( New York: Simon
& Schuster, Inc., 1984).
Morrie: In His Own Words by Morrie Schwartz (New York: Walker &
One Death & Dying (and other books) by Elisabeth Kubler-Ross
(New York: MacMillan, 1969).
Stories and Reflections on Service by Ram Dass (New York: Knopf,
The Dying Time: Practical Wisdom for the Dying & Their Caregivers
by Joan Furman, RN and David McNabb (New York: Harmony Books, 1997).
The Tibetan Book of Living and Dying by Sogyal Rinpoche (New York:
Harper Collins, 1994).
Who Dies? An Investigation of Conscious Living and Conscious Dying
(and other Books) by Stephen Levine (New York: Anchor Books, 1989).
Online Resource sites on Palliative Care